Pompe Princess👸🏻 ND ’19🍀  President of the Make-A-Wish Club😃 Hope Is In My Genes👖Jersey Girl at Heart!🇯🇪 Lovin Life!💕

Please check for updates every Sunday between midnight and 11:59 pm.

6 thoughts on “Home:

  1. John Heath says:

    Hi Megan. I heard your dad speak at a CVS Health meeting this weekend . He shared with us about your blog and my wife Karen and I just found it. I enjoyed hearing your dad speak and am proud to hear of all of your accomplishments. We are impressed with the blog and my wife Karen wanted me to tell you she loves Jimmy Choo shoes too.


    • mcrowley96 says:

      Hi John!

      I’m glad you found my blog, I’ve heard that it can be difficult to find. I’m also so glad you’ve enjoyed reading it–continue to please! I think you need to get Karen some Jimmy Choo’s…sorry if I’m a bad influence, but us girls gotta stick together!

      Thank you for your support!



  2. Rhonda Sullivan says:

    Hi Megan! Your Dad spoke at my companies national meeting. You are so inspiring and your Dad is so proud of you. Wish you could have been there with your Dad, in a way you were, just in the way he delivered your message. I always walk away from our annual national meetings with a take away…my take away was the message your Dad delivered. Thank you!


  3. Diane Vincent says:

    Hi Megan,
    My 13 month old grandson was diagnosed with Pompe at birth, thanks to the advancements being made to include Pompe testing in the routine newborn blood tests done in Ohio and other states.
    He just had his first ERT infusion this week.
    Our family is so very thankful for the pioneering work your family has done on Pompe treatment. We marvel at God’s timing and guidance.
    Keep your positive attitude and spunk! You are such an inspiration!
    Diane Vincent


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